
Hi, I'm Amar
I'm a boy, 11 years old and live in Mongolia.
Amar was transferred from the National Children's Sanatorium due to aged out to receive further care on 17th of September.
He was diagnosed with Apert syndrome, which is malformations of the skull, face, hands, and feet, combined with multiple anomaly syndromes. Upon arrival, he was a little nervous but soon he calmed down and became curious about his new surroundings. Mentally, he was normal and behaved very relaxed and well. His height was age-appropriate. His thumb is separate, and his other four fingers are fused, which cannot be released through surgery because he doesn't have four fully -formed fingers, and also toes were fused too. However, he can hold and stand and walk well balanced.
He has got birth parents and older sister, but right after his birth, they refused to be parents because of their child's syndromes and appearance.